Canadian Cancer Society has uploaded a slew of videos to YouTube. Browse the selection here.
Kidney Cancer Canada's December 2012 patient information meeting video is here.
Canadian Cancer Survivor Network has produced three videos on chemo-induced nausea and vomiting. Those are on YouTube at
Canadian Breast Cancer Foundation's new Tumblr-based platform at reduceyourrisk.ca - "Women can learn more about practical steps they can take to reduce their risk of breast cancer and be inspired to try new things to help them enjoy healthier lives."
Canadian Task Force on Preventive Health Care updated guideline for cervical cancer screening
Health News Network, Jan. 8, 2013 - The task force is recommending women aged 25-69 be screened at an interval of three years. The independent body of 14 specialist says early and frequent (often annual) cervical screening is unnecessary. The guideline is published in the Canadian Medical Association Journal. More.
How to Avoid Caregiver Burnout: 7 Tips for Caregivers of Young Adult Cancer Patients and Survivors
By Emily Drake, Huffington Post, Nov. 29, 2012 - Caring for a person with cancer can be extremely rewarding, but it can be exhausting as well. A diagnosis of cancer during adolescence and young adulthood interrupts a person's life and comes at a time when they are trying to complete the life steps (complete their education, get a job, etc.) that are necessary for transition into adulthood. More.
Let's Talk About Sex
By Emily Drake, Huffington Post, Dec. 21, 2012: It is time that the experience of sexuality of young adult cancer survivors begin to be discussed. Sexuality refers to how intimate individuals relate to each other. It is an important part of our personality that involves our sexual orientation, along with our attitudes, beliefs and behaviors related to sex. More. To follow Emily: www.twitter.com/EK_Drake.
Developing a conceptual model of teenage and young adult experiences of cancer through meta-synthesis.
The researchers identified 315 studies, of which 17 were included in the systematic review. Common themes were psychosocial function, importance of peers, experience of healthcare, importance of support, impact of symptoms, striving for normality, impact of diagnosis, positive experiences, and financial consequences. The conceptual model developed from the meta-synthesis depicts the mediators and consequences of cancer care that impact on young people’s quality of life after a cancer diagnosis. The model highlights areas that require further exploration.
In press. Taylor, R.M., et al., International Journal of Nursing Studies, 2012
Click for the pdf.
Canadian Cancer Survivor's Network Advocacy Webinar
Free webinars starting March 27 at 4 pm PST/7pm EST. The first is about how the healthcare system in Canada is structured and answers the question: who does what? To participate, email email@example.com for the link and login instructions.
* April 17 – The labyrinth of the drug approval processes in Canada; what you should know
* May 22 – Advocacy overview: Shaping the Healthcare agenda and can we really participate
* June 12 –Social Media to influence decision-makers, how to get attention among all the noise
Coping with Cancer-Related Sleep Issues
Deborah McLeod, Capital Health Cancer Care Program
Tuesday, April 16, 2013, 7:00 – 8:30 pm
Royal Bank Theatre, Halifax, and 19 communities hosting telehealth sessions.
Cancer Cancer Nova Scotia
Click for details.
Pink Spring Celebration Gala
Breast Cancer Action Nova Scotia
Saturday, April 27, 2013
Take a look around the site then fill out our survey. For more, go to Evaluating CPOP Online.
Ce questionnaire est également disponible en français.
Valleys on HuffPost
Mike Lang's new webseries called Valleys will be posted on Huffington Post beginning in April and running for six to eight weeks. "We will be sharing the story of Amy," Mike writes, "a cancer survivor, and her friends and family as they each struggle with the unique challenges that cancer has brought into their lives. The hope is that through this webseries we will be able to see cancer from many different perspectives leading to open, honest communication with the people we love." The series was crowdfunded on Kickstarter.com and is a free online resource for both the public and cancer care professionals. Watch the trailer at huff.to/13bLsBN. Webseries starts April 3, 2013.
New Survivor Advisory Councils
Over a dozen breast cancer patients and survivors were among the first to join Canadian Cancer Survivor Network's Breast Cancer Advisory Council, which will meet by teleconference and confer regularly by email to improve diagnosis, treatment and survivorship. Breast cancer patients, survivors and family members are invited to join. Terms of reference for this Council will be sent to those who contact CCSN President and CEO Jackie Manthorne at firstname.lastname@example.org.
More than a dozen prostate cancer patients, survivors and family members have become members of CCSN's Prostate Cancer Advisory Council. The group is also working to build an asbestos, mesothelioma and lung cancer primer on its website. Those interested in joining either the Asbestos & Mesothelioma Advisory Council or the Prostate Cancer Council can contact Jackie.
Out West in 2013
Team Shan, which promotes breast cancer awareness in young women, now has resources on campuses from coast to coast to coast. Lorna Larsen and her group have presented at high schools in the Northwest Territories, Aurora College and the NWT Wellness Conference 2013 in Yellowknife. Further outreach is taking place in March at post-secondary schools across Vancouver Island and the lower British Columbia mainland. In September, Team Shan will be at college and university sites in Winnipeg.
The CBO recently conducted awareness and education activities on nine college and university campuses across the prairies. It has
partnered with sports teams at Southern Alberta Institute of Technology and Northern Alberta Institute of Technology to raise awareness during campus home games. In January, Team Shan returned to the prairies to facilitate post-campaign evaluation activities at the universities of Saskatchewan, Alberta and Lethbridge; the final report will be issued in May 2013.
Kick It Up
"The evidence is clear," says Catherine Madden, executive director at Kidney Cancer Canada. "Exercise has important benefits related to kidney cancer - both in prevention and survival." For National Kidney Month, KCC is launching Kick It Up for Kidney Cancer, a fundraising marathon that will bring together fitness trainers, individuals and teams of men and women. The inaugural event will be held on Sunday, June 23, from 10 am to 2 pm in Toronto. For more information and to register, visit www.kidneycancercanada.ca.
A Unique Partnership
Prostate Cancer Canada is leading a network of health care representatives who will interact regularly with prostate cancer survivors and their friends, families and caregivers. "We are helping survivors and their circle of care live their best possible lives," says Maureen Rowlands, director of support services. "That could mean offering programs to help patients effectively navigate through the healthcare system, tools to help make the best possible individualized treatment decisions, or patient and caregiver education modules presented via a variety of channels, from apps to workshops."
Delegates from 19 clinical, community and academic institutions, as well as survivors and non-medical people, participated in the inaugural working meeting of A Survivorship Action Partnership in February in Vancouver.
Cancer Care Nova Scotia is calling for nominations for the 2013 Excellence Awards. Health-care providers, volunteers, those who work within the system, patients and families are being asked to nominate someone they believe has made a difference. Awards will be presented for leadership excellence, excellence in patient care (one for health professionals, the other for volunteers), and pioneer excellence. For more information visit www.cancercare.ns.ca/ awards or call 1-866-599-2267. The nomination deadline is April 26. Link to full story.
How Well Do You Know
Dec. 12, 2012: Hello everyone – I just wanted to give you all a brief glimpse into the final (official) results of the yoga study for caregivers. More here.
Emily is now a Huffington Post blogger, part of the Generation Why section. Read her posts here. As well, Emily is now going by Drake, her married name, and is working at the Jewish General Hospital in Montreal. Contact her at EmilyKMDrake@
Thyroid Cancer Canada's new executive director is Mary Floro-White. Her expertise in government relations and advocacy has made a difference in the lives of patients and students that she has supported by improving access to care and service. Click for more.
Shanna Brisebois is new to deSouza's communications group. Contact her at sbrisebo@desouza
Prostate Cancer Canada's new president and CEO is Rocco Rossi, formerly CEO of the Heart & Stroke Foundation of Ontario. Donald McInnes has been appointed chair of the board of directors
Heather's new email address is Heather@maxi
In the Arts
Finding Poetry in Cancer
New York Times, Feb. 4, 2013
By Tara Parker-Pope - When Kyle Potvin learned she had breast cancer at the age of 41, she tracked the details of her illness and treatment in a journal. But when it came to grappling with issues of mortality, fear and hope, she found that her best outlet was poetry. Ms. Potvin, now 47 and living in Derry, N.H., recently published “Sound Travels on Water” (Finishing Line Press), a collection of poems about her experience with cancer. And she has organized the Prickly Pear Poetry Project, a series of workshops for cancer patients. “The creative process can be really healing,” Ms. Potvin said. Click for full story.
Call For Volunteers
Help "Ask Thry'vors," Thyroid Cancer Canada's Q&A with medical experts. Click for more.