Well it’s now mid-December, and after finally wrapping up the ethics approval process in early November, I have been trying to make contacts and recruit participants for my yoga study, which is set to start in January 2012. With regard to the ethics process, my fears were unfounded, and I found my ethics process to be quite delightful. After completing the first phase of all of the ethics forms, all I could do was wait. I was waiting on pins and needles! What I realize now is how much the ethics review board is there to help guide you through this process and ensure that your study is going to be the best that it can be.
I got word that my study had been reviewed, and was waiting for me to come pick it up, and make the required changes and submit the amendments before I could receive full ethics approval. I was dreading this. I could only imagine all of the things that I had done wrong and needed to fix, change, or delete altogether! But this was not the case. The comments I received from the review board all made sense, and really helped refine and perfect my study. I was really quite relieved. There wasn’t much to change, except the unfortunate spelling mistakes I had somehow overlooked and missed, even after reading my whole submission at least 25 times!! What I learned is that you should literally make sure you cross your “T”s and dot your “I”s!!! So, over the weekend, feeling much better about the whole process, I made the required amendments, and then re-submitted my study. After speaking with the person reviewing my study, I was quite relieved to find out that she was very helpful and very positive, and wanting nothing more but to make my study as best as it could be and get me my approval as quickly as possible so I can start recruiting and implementing my yoga intervention to key caregivers of cancer survivors.
Wow, how relieving it is to hear that everyone is on the same page and has the same intentions at heart! This has definitely given me a renewed sense of confidence and optimism, and has given me a sort of second wind on the situation.
But then came the hard part. Trying to recruit such a difficult population. Not only are key caregivers of cancer survivors spending lots of their spare time administering drugs, learning about medications, taking their care recipients to appointments, etc, but many of them are also providing care to others, working, and even volunteering for their own convictions. As such, I realize that it will not be easy to recruit 20 caregivers/support persons/family members and keep them in the study. Over the past few months, I have been able to contact many individuals and organizations that are going to do their best to spread the word and promote this study as well. I don’t know what I would do with these countless individuals who are on my side.
So for now, I am very optimistic that in this last month before the study is set to start, I can reach my target number of caregivers and be able to implement this very important yoga intervention. I already have 5 participants, and some more people interested. What’s most important is that via this study, I will be able to assess what these caregivers are interested in in terms of physical activity, and how feasible and beneficial a yoga intervention is for the quality of life and psychological distress of this population. It is my hope that caregivers will take the time to take care of themselves, so that they in turn can continue to provide the ever-important care to their care recipients. Cancer does not only affect the patient themselves, but their entire social network. When that network starts to feel the effects of this disease, this can affect the care they are providing, as well as their own long-term physical, spiritual, social, and emotional health.
Just in case you may be my target population, or may know someone who is a family member, friend, support person, or caregiver to someone who has/has had a cancer diagnosis, I wanted to mention a little bit about the study – it is for anyone between the ages of 18-65 who is a friend, family member, support person, caregiver of someone who has/had a cancer diagnosis. Participants will be encouraged to participate in as many of the 12 yoga sessions starting in January 2012 as they like/can, and will be asked to help tailor the program via feedback and recommendations for future classes. Anyone who is interested can contact me via email at andicelinemartin@dal.ca or phone at 902-488-9775.
I will keep you posted as to how the recruitment process goes!
I got word that my study had been reviewed, and was waiting for me to come pick it up, and make the required changes and submit the amendments before I could receive full ethics approval. I was dreading this. I could only imagine all of the things that I had done wrong and needed to fix, change, or delete altogether! But this was not the case. The comments I received from the review board all made sense, and really helped refine and perfect my study. I was really quite relieved. There wasn’t much to change, except the unfortunate spelling mistakes I had somehow overlooked and missed, even after reading my whole submission at least 25 times!! What I learned is that you should literally make sure you cross your “T”s and dot your “I”s!!! So, over the weekend, feeling much better about the whole process, I made the required amendments, and then re-submitted my study. After speaking with the person reviewing my study, I was quite relieved to find out that she was very helpful and very positive, and wanting nothing more but to make my study as best as it could be and get me my approval as quickly as possible so I can start recruiting and implementing my yoga intervention to key caregivers of cancer survivors.
Wow, how relieving it is to hear that everyone is on the same page and has the same intentions at heart! This has definitely given me a renewed sense of confidence and optimism, and has given me a sort of second wind on the situation.
But then came the hard part. Trying to recruit such a difficult population. Not only are key caregivers of cancer survivors spending lots of their spare time administering drugs, learning about medications, taking their care recipients to appointments, etc, but many of them are also providing care to others, working, and even volunteering for their own convictions. As such, I realize that it will not be easy to recruit 20 caregivers/support persons/family members and keep them in the study. Over the past few months, I have been able to contact many individuals and organizations that are going to do their best to spread the word and promote this study as well. I don’t know what I would do with these countless individuals who are on my side.
So for now, I am very optimistic that in this last month before the study is set to start, I can reach my target number of caregivers and be able to implement this very important yoga intervention. I already have 5 participants, and some more people interested. What’s most important is that via this study, I will be able to assess what these caregivers are interested in in terms of physical activity, and how feasible and beneficial a yoga intervention is for the quality of life and psychological distress of this population. It is my hope that caregivers will take the time to take care of themselves, so that they in turn can continue to provide the ever-important care to their care recipients. Cancer does not only affect the patient themselves, but their entire social network. When that network starts to feel the effects of this disease, this can affect the care they are providing, as well as their own long-term physical, spiritual, social, and emotional health.
Just in case you may be my target population, or may know someone who is a family member, friend, support person, or caregiver to someone who has/has had a cancer diagnosis, I wanted to mention a little bit about the study – it is for anyone between the ages of 18-65 who is a friend, family member, support person, caregiver of someone who has/had a cancer diagnosis. Participants will be encouraged to participate in as many of the 12 yoga sessions starting in January 2012 as they like/can, and will be asked to help tailor the program via feedback and recommendations for future classes. Anyone who is interested can contact me via email at andicelinemartin@dal.ca or phone at 902-488-9775.
I will keep you posted as to how the recruitment process goes!
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